Patient centered collaboration: involving patients and families in health care
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Professor of Psychology, University of Maryland Baltimore County, USA
Carlo DiClemente is Professor of Psychology at University of Maryland Baltimore County (UMBC). Dr. DiClemente is the co-developer of the Transtheoretical Model of behavior change, and the author of numerous scientific publications on motivation and behavior change with a variety of health and addictive behaviors. He directs MDQuit, the tobacco resource center for State of Maryland as well as the Center for Community Collaboration and the UMBC Home Visiting Training Center. For the past 30 years he has conducted funded research in health and addictive behaviors and been engaged in clinical services and research. His latest book is entitled Addiction and Change: How Addictions develop and Addicted People Recover.
The majority of death and disability worldwide is caused by non-communicable diseases caused by lifestyle risks. Managing both acute and chronic illnesses involves not simply medication and medical procedures but also a focus on behavior change to achieve health and wellness. This presentation proposes that an effective integrated care model should seek to create a collaborative framework that involves client/patient and life context. Collaborative integrated care must address not only multiple conditions and problems but also client characteristics like readiness to change, self-efficacy, and self-regulation. A dynamic understanding of the personal process of change as well as current efforts to motivate patients and empower families can improve health outcomes.
The role and contributions of self-help groups and the self-help-friendly hospital
former Director of the Institute of Medical Sociology, University Medical Center Hamburg-Eppendorf, GER
Prof. Dr. med., Dr. phil., M.Sc. (London), Physician, Sociologist, former Director of the Institute of Medical Sociology, University Medical Center Hamburg-Eppendorf; since 1974 teaching and research in Medical Sociology, Social Medicine and Public Health in Hamburg and other places.Research interests: Health promotion, local health policies, health services research, citizen and patient participation, self-help, health consumer and patient organizations
After having given some clarifications on key concepts I will present some traditional roles of patients as well as new roles they may get in the shaping of health services. Patient centredness and participation opportunities for patients are essential requirements for quality improvements in health care.
Self-help friendliness is an approach to implement patient centredness and participation on the collective level, i.e. the level of self-help groups and organizations. The development of the approach and its main features will be described in the second section.
In section 3 the quality criteria defining self-help friendly hospitals will be presented, followed by research results concerning the acceptance of the criteria and experiences with putting them into practice.
Section 4 deals with the conference theme: Can we produce better health gain through implementing self-help friendliness as an approach to more patient centredness?
In the conclusions I will sum up the present state of knowledge and reflect on the transferability of the approach to other countries than Germany. Information on the recent foundation of a European network for self-help friendliness will be given.
Our six core strategic goals as defined in the 2014-2020 strategic planning
Board Member, European Patients Forum, Brussels, BEL
Dr. Stanimir Hasurdjiev is one of the founders and current Chairperson of the Bulgarian National Patients’ Organization (NPO) – the biggest patients’ umbrella organization in Bulgaria which accounts to around 80 disease-specific member organizations representing patients with different socially significant diseases in all 28 regions in Bulgaria.
Dr. Hasurdjiev is a board member of EPF as well as a member of several regional and international organizations and networks. In addition, he is one of the initiators and founders of the joint initiative of the European Patients’ Forum and the Bulgarian National Patients’ Organization – the Patient Access Partnership (PACT) –, where Stanimir takes the position of a Secretary-General.
Dr. Hasurdjiev serves as a Secretary of the initiative "Health Partnership" which was officially launched in March 2015 as a permanent consultative body to the Council of Ministers.
The development and implementation of the Italian Regional Program on Health Literacy
Department of Social and Behavioral Sciences of Harvard T.H. Chan School of Public Health, USA
Rima Rudd, faculty member in the Department of Social and Behavioral Sciences of Harvard T.H. Chan School of Public Health, focuses her teaching, research, and policy work on health literacy with an emphasis on health disparities and literacy related barriers to health information, programs, and care. A founder of and leader in health literacy studies, Dr. Rudd drafted the first U.S. national call to action, served on the Institute of Medicine Health Literacy Committee and contributes to analyses, studies, white papers and reports that have shaped the field of study. She expanded the concept of health literacy with attention to the accessibility of health information, the communication skills of health professionals and the barriers and facilitating factors in health environments.
The Italian Regional Program on Health Literacy has long been attentive to health literacy and the responsibility that professionals and institutions have in removing literacy related barriers to health information, services, and care. Starting over ten years ago, this program began with efforts to transform oncology care, to increase community involvement and engagement, and to forge a better partnership between hospitals and their community. This presentation highlights steps taken to illustrate mechanism of change and potential efficacious outcomes.
Health Literacy is now an important variable in health research and is being recognized as having several key components. Over the past two decades, the focus of attention for researchers, practitioners, and policy makers, has moved beyond a singular attention to the skills and abilities of individuals and links to health outcomes. Health literacy studies now include careful evaluations of health texts, examinations of the communication skills of health professionals, and analyses of the literacy related characteristics of health and health care institutions. This expanded notion of health literacy informed the action taken by the Italian Regional Program on Health Literacy.
Chair of the HPH Governance Board and Coordinator of the HPH Network Poland
Prof. Dr. hab. n. med. Bożena Walewska-Zielecka is a medical doctor, graduate from Medical Faculty, Medical University of Warsaw. She became National Coordinator of Polish HPH Network in 2011. Since 2014 she is a member of HPH Governance Board. Her first term as a Chair of International HPH Network Governance Board lasted from 2016-2018 and then second term from 2020 until now. Professor in Department of Public Health, Faculty of Health Science Medical University of Warsaw from 2011 till 2020. Since 2020 member of Public Health Committee in Polish Academy of Sciences. She worked for many years in the National Institute of Public Health, National Institute of Hygiene in Warsaw, where she developed her scientific career. Now she is Senior specialist on health promotion in hospitals in National Institute of Public Health, National Institute of Hygiene, Poland. Since 2005 – manager in healthcare (medical director) – quality assurance and patient safety. Still practicing doctor – hepatologist, travel medicine doctor; special interest: health promotion, non-communicable diseases, immunology of liver diseases, infectious diseases and epidemiology.